Tag: rituxan

Blog

What RA Remission Means To Me

Jill L. Ware
Before and after

I was diagnosed 24 years ago with RA. It took over my life. Everything revolved around my pain and sickness. At times, I’d be bedridden and require assistance with routine things. We started with Enbrel, Humira, and xeljanz. The Xeljanz increased my pain and inflammation. as one more attempt, the doctor started me on a Rituxan drip twice every six months. As you can see in the photos, it is working as with any drugs, there are side effects, my side effects for rare. I got up upset stomach, which caused me to lose 129 pounds without trying. For the time being, we have stopped the Rituxan because my disease level is almost done. Also cannot afford to lose any more weight. There is no cure and remission only last temporarily I’m going to enjoy the extra mobility and spend lots of time with my grandchildren. My quality of life is so much better now.

Blog, Rituximab saved my life

Rituximab saved my life!

Jill L. Ware
two infusions every six months

It has been nearly two years since I started the Rituxan infusions, my quality of life increasing with each one. When I first started the infusions my vectra score was a 58. Which meant my disease activity was severe. My most recent blood work shows my vectra score at a 3. Down 55 points. Yes my teeth are paying the price and a bit of hair loss. When I started this journey I was pushing about 360 and on outings sometimes needed a wheelchair or cane. I eventually had gastric bypass, but the weight loss did not help my jont pain. I had tried all sorts of injections, the newest pills. Nothing worked. Then I started the Rituximab infusions. Game changer. I can now play with my grankids unlike with my children, I sat and watched. I am now about 195 and feel better than I have in years. There are side effects, like my teeth. But I will take it any day over the pain and fatigue I felt for almost 18 years. The best advice I can give is, if you think your treatment plans are not working as you would like. Change it, talk to your doctor. If you aren’t happy with your results, look at other options. I hope and pray that you find what works for you and whatever ails you. Life is to short to live in pain.