Category: Blog

Blog, Poetry

Medication Overload

Jill L. Ware
Month supply

How do you know when you are over medicated? Do your doctors collaborate on your treatment of various illnessesWith that she took me off the Rituxan drip. I left that visit Dumbfounded. I had no idea RA could go into remission the following visit the rheumatologist replaced the reduction with a different drug. I did not understand why I needed the new drug if my RA was in remission. Doctor says it is maintenance to keep it in The stage. My psychiatric meds aren’t much better. I take several psych meds and disorder pills. He prescribes one and adjust another. Five separate medication‘s to treat my several mood disorders.

Blog

What RA Remission Means To Me

Jill L. Ware
Before and after

I was diagnosed 24 years ago with RA. It took over my life. Everything revolved around my pain and sickness. At times, I’d be bedridden and require assistance with routine things. We started with Enbrel, Humira, and xeljanz. The Xeljanz increased my pain and inflammation. as one more attempt, the doctor started me on a Rituxan drip twice every six months. As you can see in the photos, it is working as with any drugs, there are side effects, my side effects for rare. I got up upset stomach, which caused me to lose 129 pounds without trying. For the time being, we have stopped the Rituxan because my disease level is almost done. Also cannot afford to lose any more weight. There is no cure and remission only last temporarily I’m going to enjoy the extra mobility and spend lots of time with my grandchildren. My quality of life is so much better now.

Blog, Poetry

Grandparents that raise their grandchildren

Jill L. Ware

Over the years I’ve had many grandparents raising grandkids frequent my place of employment. Have always had respect for them. Until recently, I had no idea how exhausting and stressful it could be. My son and his wife went on a four-day vacation and I stayed with the three kids. It was absolutely exhausting. The minute my butt cheeks hit the couch. There was one screaming “grandma come here”. The meals, laundry, baths and picking up never ends. What I’m getting at is that if you see grandparents raising grandkids, pat them on the back. I only did it for four days, and was ready to lose my sanity.

Blog, Poetry

Finding Balance Eludes Me

Jill L. Ware

You’d think with all the medications I am on that it would keep my moods under control. My thoughts lately I’ve kept myself. Needless to say, most of them are mean. I refuse to let them escape me.

I roll all these thoughts around in my head day and night. The conversations I’ve had with loved ones playing in my head. I picked them apart, one by one to decipher their meaning. The only change my doctor has made with my meds is swapping my Wellbutrin at night for olanzapine.

The doctor did this because he was seeing symptoms of paranoia in me. There is paranoia in my family genetics, the doctor actually a couple doctors have told me they think my pot smoking is causing several illnesses in me. I had never heard anything so stupid. I asked if I should quit for a few weeks and see. She said full results of quitting wouldn’t show for six months. I decided to do my research on the subject. In some cases by quitting, the issues fix themselves, and when the person starts back symptoms return.

I am sick of not thinking right. I started my pot free life five days ago. I pray that it fixes some of the wrong thinking. Also a few other things as well.

I could use some encouragement or advice. I haven’t blogged in quite some time. If I blog more often, it would probably benefit me. I’ve been in the state of “if you can’t say anything nice don’t say anything at all”. I have been hiding from society, I don’t like the monster in me.

Blog, Borderline Personality Disorder, Poetry

Prisoner of My Thoughts

Jill L. Ware

A time to vent is difficult to find,

Thoughts held captive by my mind.

Some things are better left unsaid,

As chaos rolls about in my head.

For years I’ve searched for the key,

As of yet nothing works for me.

A prisoner I feel to this disease,

Self control I use so no one sees.

Inside I feel like I’m a mess,

Forever wishing I’d worry less.

Coping skills I have a few,

They factor into everything I do.

From this prison I wish to be released,

No one cares even the least.

If I am quiet there is a reason why,

My thoughts make me a not nice guy.

Jill L. Ware

Blog

Bite Me Bi-Polar!

Jill L. Ware

It is not often I have the urge to drive my car into a tree at a high rate of speed. Yesterday there it was out of nowhere. That is how this works, this being these nasty mood disorders That have been plaguing me all of my adult life.

I try so hard to keep my monster hidden, yesterday was an epic fail. I really should name my monster within truthfully though I don’t want to be on a first name basis with her, my beast.

She doesn’t play nice so I’m thankful she doesn’t stay long these days. She says just long enough to show her ass and leave me looking absolutely idiotic. Not like I need extra help in that department. I do find enough job without her help.

I spent the last six months taking in nature and Photographing the Beauty I see. My avoiding being in society since Covid appeared isn’t because my fear of getting sick. I hide from fear of confrontation from all the people that have decided they can talk to you any hateful way they please. You know how true those words are, don’t you?

PEOPLE SUCK! I’m trying real hard not to be one.